Updates

No, I’m still not able to craft, but I thought I would let you know that I haven’t forgotten about you all.

In case you hadn’t heard, I have been unable to use my hands for much of anything since Dec. 4 of last year. I have lost my fine motor skills and, some days, any skills. There are days when I can do the dishes with little to no pain, but also days when I need help showering and getting dressed.

Obviously, I can no longer teach or make videos, but I also gave up driving in February because gripping the steering wheel was painful and one shouldn’t be in control of something that could kill people when they aren’t sure if they can control it. At the same time, I resigned from what was left of my job at Joann. (I had already scaled back.)

I still do the weekly newsletter and some blog posts for Mosaic Moments — they give them too me far enough in advance that I can do them when I feel up to it, since some days I can’t type at all. I am so thankful for their support and encouragement and understanding through all of this.

So, what does an unemployed person unable to cook, clean or do any of their hobbies do all day? Well, my sister took me to the mall one day, so I made her get our photos taken with the Easter Bunny.

I’ve had a couple opportunities to do a bit of photography — mostly with my phone since I don’t always have the strength to hold up my camera.

And, I play with these babies a lot … from the left, that’s Whiskey, Irish and Bourbon. Irish had a green spot on her when we got her and, well, in my crazed state, that’s what I named them. To each his own, right?!

Matt has helped me immensely — washing my hair, tying my shoes, and cutting up my food, in addition to taking over all of the cooking, cleaning, laundry, and taking care of the animals. He’s also made some modifications around the house to make some things easier to do. Yep, he still calls himself Minion Bob.

I’m still not sure what caused all of this, if there is a treatment, or if I will ever get better. It came on suddenly, spread and then stopped. The pain and swelling is intermittent, but seems to be triggered by use of my fingers or gripping anything. Pain can be sharp, burning, shocking, aching or squeezing and can be in the fingers, hands, wrists, elbows or right shoulder. My muscles give out after a few minutes and then tremors set in. It’s worse on the right side, but both hands are affected.

I’ve been to a handful of specialists, including one at the Cleveland Clinic, who all say the same thing … it’s not my area. I can’t help you. Here’s a new drug to try. Go see so and so.

I can tell you it’s not arthritis, MS, lyme disease, or any other auto-immune disease. I can tell you they did find a case of carpal tunnel so minor, it’s not viable for surgery and isn’t causing any of these problems. They also found a genetic heart condition that will need fixing 20 years from now, but isn’t causing any issues at the moment.

I’ve tried physical therapy, wore two different wrist braces, had a steroid injection, a dose of oral steroids, and had two different wrist compressions, with little to no help.

And, we’ve been trying all different sorts of medicines to try to find some relief — at least of the pain. So far, the only thing that really helps is rest. If I sit with my arms up on the arms of my sofa or propped up with pillows, I am completely pain free. Of course, that only allows me to watch tv, so it quickly gets boring!

I see another specialist at the end of April and am getting a second MRI — this one of the neck. Hopefully one of these will have an answer. The EMG saw no issues with nerve compression from the neck, but the doctor at Cleveland Clinic said this could be misleading, so I guess there is hope. Something has to give since I’ve gained 20 pounds since January!

Personally, I am no longer looking to the future. I’m just living each day as it is … taking one day at a time and doing whatever I can. I’m on another dose of steroids due to an allergic reaction to one of the meds. Thanks to their help, I’ve typed more today than I have in the past month — with very little pain. And I feel like the Energizer Bunny with sore wrists and elbows. So, I’m off to attempt to do the dishes …

Keep me in your thoughts and drop me a line here, via email or on Facebook to show me what you’re creating, the new techniques you’re learning and fun you’re having. Happy Crafting!

8 thoughts on “Updates

  1. So sorry to read this! It all sounds so awful. Prayers for the drs to figure out what’s wrong and tons of prayers to God to help you with pain, discomfort, all of the unknowing…it’s all too frustrating I’m sure! Prayers for your husband to be able to keep up taking care of the house and you when you are unable.

  2. My heart goes out to you. I have much of the same symptoms you describe, but from an auto immune condition relieved with Humera shots. I hope you find an answer soon, I’ll be sending out positive thoughts for you and your doctors. Your photos are amazing! Bless your husband and sister, they both sound like keepers 😉

  3. I am so sorry all this has happened to you. You certainly do not deserve this! Thank God you have a good husband who can help you. Hopefully you’ll find out in your next doctor visit what is causing this. My thoughts and prayers are with you. vicky

  4. Oh, Candy! Tami didn’t tell me things were this bad! Oh, how frustrating to not get real answers or real relief. Chronic pain can be so miserable and misunderstood by those around you. I pray that you will soon find a solution and good health too.

    I’ll mention this, but you perhaps already know about it…have you tried Dragon Naturally Speaking? It’s a software program that allows to to speak directly into another program, like WORD, and it will type up what you are saying. It takes a little bit to adjust to, but it might allow you to do something productive on the computer without taxing your body. It comes with the microphone, too.

    well, just know I am thinking of you and will pray for relief and restoration to your body, and answers…lots of them!

    Andrea

    Andrea at Five Pines fivepinesdesigns@gmail.com http://www.mosaicmoments.com/category/blog/tips-techniques/ http://fivepinesdesigns.blogspot.com http://www.journella.com/storyboard/index/story/author/authorid/394

    • Yes, I will be ordering that program if things get worse or if I get a diagnosis. For now, I am holding off since there isn’t any extra money around here these days with me out of work. Thanks for thinking of me and for taking the time to drop me a line! I so love your pages and am currently living vicariously through your articles on the new dies!

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